Then, I looked at my phone and pulled up instagram. I immediately saw the picture that my Queen posted and sat for about 5 minutes staring at it. What a beautiful picture of regular folks doing regular things. Not necessarily easy, glamorous, fun or designed to make you laugh but just living life. That picture made me smile for a long time.
I admitted a lady yesterday that has ALS. That is the fancy term for Lou Gehrig's disease and it is not easy, definitely not glamorous or fun and I would think difficult to even smile at times. As I spent time with her and her husband, I noticed that there was something about both of them that drew me in. I wanted to help them anyway I could. By the end of our time together, I asked if I could come over today to visit with her again and sit with her while her husband got out of the house to do some volunteer work. She mentioned that she didn't like to be alone and he needed the time to do something that filled his soul.
I showed up today and walked in the open front door to find my lady in bed. She was comfortable and had a view of a beautiful mountain meadow that deer and elk would stand around eating grass. When I commented on the meadow, she scribbled," aren't I lucky to have this nice view?"I agreed. She can hardly talk, swallow and her muscles are getting very weak and she is aware of the beauty of the meadow! After I checked her out, I pulled her rolling walker up next to the bed. She called her dog on the bed to lay by her while we visited. I talked and she talked but when I didn't understand, she scribbled and did hand gestures so we could get to know each other. We talked about decisions she needs to make, and how she can have control when she feels like she has none. I asked her about her husband, their 50 years together and how he too will have to understand her wishes and she understand his. It was quiet and I figured she was probably tired and I would get ready to go. But as I bent down to pack up, asked me about my family. While I love to talk about my family, I wondered if she was just being polite and asked her if that was the case. "No" she blurted out and reached for her pad and pen. I told her I would love to talk about my family and I pulled out my phone. I showed her pictures and the picture on my blog. I told her the story of my queen, where she is and what she is doing...and she clapped her weak hands together, smiled so big that her eyes almost shut and put two thumbs up. The only word I can describe her as is joyful.
She was joyful for me and my family...while she slowly gets weaker and needs more care. Humbled....
We finished our visit, I bent down and hugged her and thanked her for talking with me. I told her that I am so glad that I am getting to take care of her and would see her on Monday. Then I looked around her modest home and left.
There is a certain quality of life that we all strive for. For some of us, it is a perfect house, lots of cars, toys and things. For others, it's a close family and health. And, for others, it's being content in the moment, where we are, with what we have and with what health we have.
Some would say that this woman is dying...and before I spent my time with her today, I was one of them. But she is not, she is busy living...maybe not how we would picture living, but for her it is what she has now and instead of hanging her head down, she is looking out the window at the deer and elk and smiling, she is being joyful with others, for others and is appreciating what she has now knowing it will be changing.
I seem to get these people that I am supposed to be helping that leave me speechless (and that is not easy.) People that I learn so much from about hope, love, living and dying. I can only hope I give half of what they give me back.
We'll tawk tomorrow,
I love you all,